AS A YOUNG BOY, I WAS SO ENTHUSIASTIC TO GO TO SCHOOL. But for my parents, as I understood it, it was very challenging.

They had to face the reality of how to part with their blind boy. Also, the people and neighbours accused them of them being irresponsible.

My father told me every time I leave the house to go to school, he could not follow me. He always thought about what the people were saying.

My mother will send me because my mother is stronger in that sense.

FOR ALL PARENTS OUT THERE, I wish to urge all of you who have children with disabilities, give your children an education.

With education, you are giving him or her the important equipment to live independently.

You can give them as much money as you can afford but the money will go. If you give them education, it will stay with them forever.

IN ADDITION TO ACADEMIC SKILLS, I always see that primary education provided me with an important background, basic skills that prepared me to lead an independent life. In other words, being a blind person, we were taught how to groom and take care of ourselves. How to live independently.

For every blind child, I see survival skills as a very important factor. Because even with academic success, without the necessary guidance, from my observations it would be very difficult to survive in life.

COMPETITION WAS STIFFER DURING SECONDARY SCHOOL. I managed to continue until Form 6, before pursuing my degree in law at Universiti Malaya. As a matter of fact, I was the first blind person in the country to take up law.

When I was called to the bar in January 1989, again I created a Malaysian record as the first blind person in the country to get legal certification as an advocate and solicitor.

Why do I stress on the records? Because the greatest challenge for blind students is a lack of books.

I PRACTICALLY DID NOT HAVE ANY BOOKS AVAILABLE IN BRAILLE. So I had to double my efforts.

I spent the greatest part of my time in university to transcribe books into braille. During my school time, the blind at the time did not even have any copy of the Quran in braille.

The Quran is the basis for Islamic books so I think it is a denial of our right to have equal access to the Quran.

BESIDES STUDIES AND PROMOTING MY LEGAL PRACTICE, I was also active in NGOs that provide services for the blind.

I was president of the Society of the Blind in Malaysia from 2000 to 2010. I am also co-founder of the Malaysian Blind Muslims Association and served as president from 1989 to 2002, before I resigned for the benefit of younger leaders.

Now I am still active in the associations but perhaps to a lesser degree.

IN 2002 WE COMPLETED THE DRAFT FOR THE PERSONS WITH DISABILITIES ACT. I headed the technical working committee and the Act came into force in 2008.

It was a five-year process. It took quite a while because in 2006 the UN came out with the first international convention on rights of people with disabilities, so we have to fine-tune our proposed bill.

I was given the privilege to represent the country at the UN in 2006 when we negotiated for the convention.

MY EMPHASIS IS MORE TO PROMOTE THE RIGHT TO LITERACY AMONG THE BLIND. The rights for blind people to have equal access to reading materials in braille.

Be it for education or any other pursuit. Our focus is mainly on transcribing Islamic religious books as well as academic books.

We believe these two genres have been sidelined.

WITHIN ONE WEEK OF MY ARRIVAL IN THE UK IN 1991, I WAS GIVEN A COPY OF THE BIBLE IN BRAILLE FOR FREE. It gave me a challenge.

If Christian voluntary groups can work to give free Bibles, why can’t we Muslims provide free Quran? So that’s what I tried to do.

When I came back to Malaysia, we worked on a research project to produce the Quran in braille and now we have the capacity here at KL Braille Resources.

In order to finance the project, I launched what we called the Wakaf Al-Quran. We invite the public to sponsor any number of Quran as they wish and each set is priced at RM250.

With this sum, we finance the production of the Quran and distribute them to the needy.

I HAVE LOVED CHESS FROM A YOUNG AGE. I see chess not only as a competitive activity but for any disabled or blind person, it can also provide you with an opportunity to integrate with normal people.

EVEN THOUGH I AM BLIND, MY UNIVERSITY’S TEAM ACCEPTED ME JUST LIKE ANYBODY ELSE. I had taken part in an open tournament for selection for the university’s team.

I was the only blind person there. But I competed against sighted people and got third place.

They needed four people to fill the team. I also played in the UK’s chess league.

FOR THE 2009 AND 2010 PARALYMPICS, I WON GOLD FOR CHESS. Another achievement was in 2003 when I took part in the ASEAN Chess Championship for the Blind in Mumbai, India, and won second place.

Now I am still president of the National Chess Association for the Disabled and our members are busy preparing for the forthcoming paralympic games in Kuala Lumpur in September.

The current chess set produced by KL Braille is also being used exclusively for the paralympic games.

WHEN BLIND PEOPLE PLAY WITH SIGHTED PEOPLE, both players have to announce their move. The board is modified to allow for usage by blind people.

But we don’t compromise on the rules. There is no difference to the rules.

The black and white pieces, how a blind player can tell is based on touch.

BE IT VISION 2020 OR TN50, I wish to see that disability issues are not sidelined. The way I see it, disabled people should be given equal rights with other citizens.

They are not to be discriminated against or left out. They should be given all opportunities.

The movement to promote equal rights has been talked about since 1981.

IN THAT SENSE WE HAVE SEEN MUCH PROGRESS, but in some other areas, the progress is too slow. For example, we have difficulties with financial institutions.

Just to open bank accounts, have I always received grievances from my blind counterparts. They wanted to open bank accounts but are not allowed to by certain banks.

DISABILITY ISSUES ARE OFTEN NOT GIVEN ENOUGH COVERAGE. The media are prone to focus on issues that can trigger sympathy.

When you talk about disabled people, I think it is more worthwhile to talk about rights rather than individual challenges.

When doing a story, just ask yourself, who will benefit?

If it is just one or two people, how many stories do you want to do?

THE MEDIA RARELY HIGHLIGHT STORIES FROM THE OKU’S PERSPECTIVE. They will take a third person’s view.

If you want to talk about the problem of beggars, those selling tissues on the streets, just go and talk to them.

If authorities want to catch them for selling tissues, the first thing we must ask is, have we given them opportunities to make a living?

OPERATIONS TEND TO INCREASE WHEN THERE ARE BIG PROGRAMMES PLANNED. For example, if the prime minister is coming, they will be detained and put into trucks, sent off somewhere and asked to find their own way home.

If the breadwinner is arrested, how will those left at home survive?

Maybe the spouse will take the children to go out and beg.

WHEN THERE ARE NO JOB OPPORTUNITIES, what other choice do they have, at a time when even healthy able-bodied people are finding it difficult to find jobs?

What do you expect?

MALAYSIANS ARE VERY CARING. I don’t dispute that. But when it comes to giving disabled people their rights to lead independent lives, that’s when the problem starts.

For example, when you want to ride the LRT, the public is very caring. I don’t think we have any big problem anymore. The awareness is there.

But do you know that for people using wheelchairs, to have access, is it still very difficult? That is their right.

BEING BLIND IS NOTHING TO BE SHY ABOUT. As a matter of fact, we want to be treated just like any other ordinary people.

People often call us “golongan istimewa” or “kelainan upaya” (differently abled).

The term “orang kurang upaya” (disabled) shows that we have a disability but we are not pampered.

TREAT ME JUST LIKE ANY OTHER OF YOUR FRIENDS. If you can joke with and tease them, do the same to us.

What is the difference? We are the same. Just that it has been fated that we lost one of our senses.